My AS, My Life
Videos, guides and resources giving practical advice on self-managing axial SpA symptoms
Visit the pageLiving with axial SpA is what happens between medical appointments
We ran a consultation with patients and healthcare professionals, which identified the key programme objectives:
Since January 2021, we have run 54 online self-management sessions in partnership with 42 rheumatology teams and reached 1376 people living with axial SpA.
We have shared some of the results in:
The British Society for Rheumatology awarded Zoë Clark the Chris Moran award for Best Poster at the Annual Conference 2022, reflecting both presentation and quality.
We run regular Facebook Live sessions to give people with axial SpA:
Since April 2020, we have run 120 Facebook Lives and had over 370,000 views.
Signpost your patients to our My AS, My Life homepage so they can access recordings and extra resources.
Your SpAce enables people living with axial SpA to engage with their condition, learn more about axial SpA, and build skills to manage the impact it has on their life.
Co-produced by healthcare professionals and people living with axial SpA, Your SpAce is a credible resource you can easily signpost patients to. It provides a much-needed community for people who are at the start of their axial SpA journey or who are struggling and feeling isolated.
Order a free pack of promotional materials to easily signpost your patients to Your SpAce. A promo pack contains A4 posters for clinics and postcards with QR codes that you can hand to patients.
We are currently:
If you would like to be involved in future consultations regarding the programme, please contact Zoë Clark our Senior Self-management Programme Officer.
If you would like to share any information, knowledge or research updates with our community, please contact Zoë to learn more about running a My AS, My Life Facebook Live.
Videos, guides and resources giving practical advice on self-managing axial SpA symptoms
Visit the pageOrder free guides to hand out to your patients, or they can download them directly from our website
Find out moreFind your local branch to signpost patients to, offering a welcoming community and physio-led exercise classes
Find your branch